The KDA's latest fundraising effort is underway.
"You are not alone in your quest for a treatment
and cure"
Click here to view the letter
4/21/09
The KDA welcomes our newest KDA Board of
Directors member Lou Tudor. Please
see this link
for a short bio for Lou.
The KDA has added a new easy
way of making donations to the KDA using Razoo - Make a credit card
donation by using the
SECURE SERVER "Donate Now"
button on the right. Razoo is a service
that processes and routes credit
card payments to non-profits.
Razoo is not charging any
processing fees for donations
The last 2 chat transcripts have been
added.
Click Here to go to the
transcripts page
3/30/09
The last chat transcript with
special guest J. Paul Taylor, MD,
Ph.D has been
added.
Click Here to go to the
transcripts page
2/25/09
The below link
will take you to a website will explain the
choking (dry drowing) spells that most of us
with KD eperience on a regular basis. It is
called Laryngospasm. There is even a short video
of what is occuring.http://www.voicedoctor.net/therapy/laryngospasm.html
The last 2 chat transcript have been
added.
Click Here to go to the
transcripts page
1/9/09
The below
exercises were recommended by a certified
Physical Therapist. Several of these exercises
are designed for someone that is having
difficulty walking; or feels more comfortable in
a wheelchair, but can still stand and transfer
without assistance. Most exercises
can be modified by adding light weights and by
holding a position for a longer period of time.
I have personally performed all of these
exercises and found them to be very helpful in
maintaining and improving my strength and my
balance as well as providing me with improved
self-confidence.
KD Smart Exercise Guide Part II (2009)
1/7/09
Researchers Explore Self-Defense in Nerve
Cells for SBMA
Click here to read more
12/17/08
Conference
Highlights
Mike Goynes has put
together a nice summary of what took place at
the 2008 KDA Conference. You can read about what
took place at the
KDA Forums
11/03/08
Distance
Challenge
Fundraiser Ed Meyertholen is on the run
again to raise research funds for the KDA.
Please visit our
Distance Challenge pledge page.
10/15/08
2008 Helping Neighbors
Fundraiser launched (please read)
Click Here to
find out more.
8/27/08
Use Goodsearch to raise
research funds for the KDA
I am sure that most of you use the
internet to search for many things
each day as I do myself. There is
a new Web search engine that will
pay the KDA for people to do a
search using Goodsearch and it is
very simple to do. All you have
to do is go to following link
www.goodsearch.com and on the
screen where it asks you "
Who
do you Goodsearch for?"
type in
Kennedys Disease
Association and it will
find the KDA as a listed charity.
Next step - Below that box
select Add Goodsearch to your IE,
FIrefox or MAC toolbar.
this will install and add a small
toolbar to your web browser and
that is all there is to it.
The next time you want to search
for something on the internet you
can use it and at the same time
raise funds for the KDA. This is
a very easy way to help the KDA
and the more people we get to do
this the more funds we raise.
Thank you for your consideration.
8/25/08
The last chat transcript have been
added.
Click Here to go to the
transcripts page.
8/13/08
The 2008 Kennedy's Disease
Association Conference is
scheduled for November
19-21, 2008 at the BWI
Airport Marriot Hotel, Baltimore
MD.
CLICK
HERE to go to the conference's
page for detailed info.
7/23/08
Take a look at the new KDA Calendar.
On the KDA main page you will see
a green button like this
it will take you there
to see current and upcoming events with links on
the calendar to take you to more information.
The last 2 chat transcripts have been
added.
Click Here to go to the
transcripts page.
5/13/08
The
KDA has a new chat room. If you
use chat you will need to
re-register in order to use the
new room.
Click Here
to go to the chat schedule page and look for the
ENTER CHAT button to
register.
4/11/08
2008 research grant applications
are now being accepted. Please
click here for details, Also
past grants awarded are listed on
this page.
4/8/08
The latest edition of Coakley's
Corner (Impacts) has been added to
the site
Click Here to go to Coakley's
Corner page.
A lower back exercise guide has
been added to the Exercise page
Click Here to see it. Also
read the disclaimer.
3/05/08
A list
of KD Associates &
Doctors/Researchers has been
added.
Click Here
1/17/08
The Kennedy's Disease
Association is committed to promoting medical
research to find a treatment and possibly a cure
for Kennedy's Disease.
Thanks to the
generous donations of so many this past year, the KDA’s board of directors has approved the funding
of $50,000 in research grants. Applications were
accepted through September of 2007. The
Scientific Review Board with the assistance of
other researchers reviewed the proposals and
recommended the finalists
Click Here
to read more about the grants
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