Kennedy's Disease Association

A Public Benefit, Non-Profit Organization

"... almost all of the nurses and doctors did not know about Kennedy's Disease. I referred them here. I want to thank the creators of this website."

Testimonials

You can share your experience with the KDA with others by writing to us at Contact the KDA  or by clicking on Testimonials below and writing a rewiew on Guidestar.

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More KDA Testimonials

"I have only recently been diagnosed with Kennedy's Disease (mis-diagnosed Muscular Dystrophy in the 1980s) and I went searching the internet trying to find out what I could. I quickly found your site and am having a great time informing myself!!!
Thank you for being in cyberspace to meet me at a time of need."

-- Kevin Brennan, Australia

 

"I thank God there are so many who will share their story to give others hope! My brother was diagnosed with SMA in 1996 and today after a subsequent visit to the doc, they now believe his disease is Kennedy's. I am relieved to know that it's similar to the SMA diagnosis. This younger brother of mine is a very special person and I'd like to have him around for awhile. Thanks to all who have shared their stories."

-- Sharon Durda, Ohio, USA

 

"My husband was diagnosed with KD last year. He is coping with the thought of having to use a wheelchair in the future. I think this is a good site to have, because it has some encouraging words. Thank you for having it available."

-- Julie Nolte, Minnesota, USA

 

"My father passed away on September 10, 2002 from respiratory distress, brought on by advanced KD and lupus. I miss him very much. He was in the Ottawa Civic Hospital for almost a month before passing, and almost all of the nurses and doctors did not know about Kennedy's Disease. I want to thank the creators of this website. I referred them here."

--  Elisse Meshake, Ontario, Canada

 

"Finally diagnosed with KD after 3 1/2 years of testing. Thanks to a wonderful Neurologist and General MD who were equally driven to determine my ailment. That was 4 years ago, and am continuing to walk (slowly) and take care of chores around the house. Thanks to a wonderful family and stubbornness on my part.. I might be slowing down, but not giving up .... Am glad to see finally information being made available about this disease.. THANKS for the website."

--  Robert Antolin, California, USA

 

"I am very glad to see that you have added the personal stories, they are a great help. They give an outlook on what to expect with such a disease. It makes me proud to see people who are willing to express and share their stories with the world, keep up the good work!"

-- Jennifer Cullen, Ontario, Canada