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Kennedy's Disease Chat Transcript 05-17-2008
Topic: Open Forum/New Chat Room
Host: Terry Waite
TerryW Hello Dart
Dart! G'morning Terry - we hope that this is a good one for you!
TerryW I hope so to, I will be right back
TerryW I am back
TerryW Hi Murf
murf walking TJ through
TerryW hi TJ
TerryW Hey Ron
Ron Hi guys, Hoiw are you all?
TerryW My PC got a real nasty Hijacker Virus on Friday night
TRAILBLAZER Hello everyone and good morning - tj
murf Hey Ron
TerryW Hoe you feeling TJ?
TRAILBLAZER Tired-- leg hurts
TerryW I hope that after they take care of this you will beel better
Ron Thanks again Terry for helping me get on the new chat.
TerryW Hi ALex
murf Hi Alex
TerryW no prob
TRAILBLAZER Got to go back wednesday to the hospitial toclear the blockage in my right coronary artery
Ron Hi Murf. How goes it?
Alexandre Hallo Terry how are you today?
Alexandre Hi Murf!
murf It goes. I blew the powere box in the house the other day and that just cost K
Ron TJ glad to hear that yoiu are doing pretty good.
TRAILBLAZER Thanks Ron
TRAILBLAZER Don't know how long I'll be on the chat, I'm pretty wore out
murf My case is with the Halliburton doctors and attorneys to decide if I need to go on disability
Ron What happened to your electrical box? Did you have a lightening strike or what?
murf TJ we got you on any way and I'll be up after the chat
TerryW HiHi Losh,
Craig_H hi terry
loshimo Hello everyone. This is Luis Shimomura from San Francisco
murf It may haqve had something to do with the storm but I think it had more to do with a bad pool electrican
TRAILBLAZER Hello Luis
Ron Hi Craig. Glad you could make it today.
TerryW If you all look on the right by the user name you will see a little key that shows when someone is typing
murf Hey Luis you're new
Craig_H thanks ron ............ not been on in several months
TRAILBLAZER I need a cigarrette
TerryW this way you can telll if everyone is just sitting on their hands
Ron Murf--I think your pool electrician should pay for the new panel.
loshimo Hi Murf... Actually I'm not too new.
TerryW losh is an old timer here
murf never happen
Alexandre Good morning, Luis Shimomura how are you today?
murf loshimo glad you could make it
murf how do you guys like this new chat?
loshimo Alexandre, my friend... I'm doing fine. How about yourself?
TRAILBLAZER Anything new about KD
Ron Hey Terry--I like the new chat room. Hope it keeps us on the chat without booting us off all the time.
murf TRAILBLAZER didn't you get your cure mailed to you?
TerryW I got a terrible Browser hijacker virus on my PC that my software did not protect me from. I tried differrent software packages to remove it yesterday but they could not do the job so I put my old PC Tech talents to work and I trmoved it manually by hand
murf o sorry
Craig_H murf, seems faster, miss the having info like "location" with the user name
TerryW It was a pain but I trackked down the files one by one on my PC and l killed them
TerryW I ran the scan again and I am clean
Ron Seems like a long process terry.
TerryW luckily I know how they work
murf how did it get in?
TerryW Susanne went to watch a video on that big texas sinkhole
TerryW when she clicked on the video it downloaded
Craig_H trailblazer. I wish I knew anything new about KD
murf Dam Texans }
Dart! Smart guy you must be, Terrry! Congratulations on your success!
murf did you report it to Symantic or Macfee
Ron The Texas sink hole is from tking all the oil out of the ground. LOL What do you think TJ and Murf.
TRAILBLAZER Hey Craig - I had a heart attack last week and when they went to operate on me because of my KD they did not give me a bunch of antibiotics and before the procedure was over I could feel the pain.
murf or drilling into an old mine shaft
Craig_H oh my gosh Trail
Craig_H we not supposed to have anti-biotics?
TRAILBLAZER Not a lot I think
Craig_H and what does anti-biotics have to do with pain ?
Ron TJ hope you are doing well after major surgery and a heart attack. Our prayers are with you.
TRAILBLAZER At least thats what my Cardiologist said
murf I ask them to knock me out with Deprivon
Craig_H you doing ok now trailblazer?
murf I think thats what its called
TRAILBLAZER Thanks Ron - gotta go back and have a stint put in my right coronary this wednesday
murf It good stuff
Craig_H I have my last NIH dutasteride visit in days
TRAILBLAZER yes Craig other than trying to get around - very sore - can't drive for weeks
murf You need to ask the doc what stint or who is the manufacturer of the stint ... i may want stock in that company
Ron Me too Craig. I will be going to NIH on June and .
murf I go June th
TRAILBLAZER Bite me
Craig_H May - for me , don't think they've changed it
Ron TJ you never could drive that good anyway. LOL
TRAILBLAZER Does anyone really feel different
Ron Not me. I must be on the placebo.
Craig_H I feel my best when my blood sugar is under control
Ron Thats great. Me with type diabetes and they give me a sugar pill. LOL
Craig_H Ron, do you feel weaker when sugar level is high?
Gary_KC Good morning! Gary Uchiyama joinde from KC. It is nice day.
murf TJ was tied and had to go lie down
Ron I feel alot weaker this past year. Of course I am a year older too.
TerryW Hi GAry
murf Me too Ron
murf still falling and for the first time twice out of my chair
TerryW Did anyone have problems getting to the KDA site this morning?
Craig_H Ron, I can almost always tell if my sugar is high depending on how my legs feel, before puncturing my finger
TerryW or chat
murf TJ did be he had the wrong address in his favorates
Craig_H Terry, I couldn't. I had to go to email link to get into room
TerryW TJmm shame on you
Ron Sorry to hear that Murf. Falling while walking is one thing, but falling out of your chair, that is terrible.
TerryW that is strange
Craig_H KDA site wasn't loading
TerryW I got to it fine
TerryW some people have reported not being able to get to it
TerryW and some did not have any issues
Craig_H maybe y'all don't like some of us? ;)
murf Ron - @ full throttle running the dog the right wheel caught a curb and turned deg
TerryW Don is trying to get into chat and just e-mailed me saying he could not get to it
TerryW I sent him the direct link
murf Chair stopped I didn't
Dart! Yes, I, too, had a problem - the site did not want to accept my 'username', but it is OK now.
Ron Murf....Know your limitations. That is the book we live by.
murf no broken bones though
murf First time in years of being in a chair I flipped it
murf rolled my chair lol
Ron I guess we can now call you FLIPPER. LOL
murf LOL = lol
TerryW that should be your chat ID murf
Ron Murf--is TJ really doing good?
TerryW where did TJ go?
murf ya i think so I'm going up there after the chat
murf he was tired and logged off
loshimo Has anyone experienced swollen feet recently? Can this be KD related?
TerryW not me my feet are all bony
TerryW no more muscle
murf Do you know that if you type el -o -el you get lol
Ron The balls of my feet get sore sometimes. You all know what it is like to have sore balls. LOL
Ron Has anyone talked to John Coakley lately?
murf he's doing ok
Ron How is he?
murf beet ya
TerryW Do you all like the who is in chat box that shows whos in chat?
TerryW kind of neat
TerryW SOmetimes furing the day I log into chat and wait to see if someone sees me and joins, It's sort of like fishing for KDA members
Ron Do we really need the time with every data entry?
TerryW data entry?
murf Ron you can turn that off yourself
TerryW youcan turn off the time stamp
TerryW on the tools bar below
TerryW hover over the tool
murf Thanks Terry for finding this site. I like it much better than the Bummer chat. It was a real bummer man
Ron See what happens when some of us are computer illiterate.
TerryW I think this will work better
murf The computer is only as smart as the loose nut behind the wheel ... sort of
TerryW Its supposed to be here today
Ron I talked to Angela and she said you'll had a great chat on the rd of may. It was my birthday and I went away.
murf we had a chance to test drive it too so we are cheating
Ron LOL Murf.
murf Happy birthday
TerryW what happend to Alex
murf lost connection?
loshimo I was privately chatting with him and he said he was going back to the public chat and that's the last I saw of him.
murf We need y'all to report any problems you encounter so we can evaluate this site and make your chats a better experience
TerryW sometimes dial up from other countries have issues with the connections
Ron Nice job Terry and Murf.
TerryW I will have to e-mail him to see
murf All Terry
Craig_H y'all take care
murf cya Craid
Ron Thanks Terry. Good job. Nicr not haveing Bummer.
Ron So long Craig. Stay healthy till next we chat.
Gary_KC This is better chat because we can change font size now. It is easy to read for me.
murf I like that too
murf There is a lot you can do here so go exploring guys
Dart! That must represent a lot of searching to find and choose a better service provider.
murf Terry found a few
murf we only tested two before finding this one
Ron How is Susanne doing/ Have not heard from her in a while.
murf I like it and I think we signed up for one year ... is that correct Terry?
murf So next year April we'll sign on again or go looking again
Ron BOD will be on the of May right? I will not be able to make it on that date.
TerryW got ya ron
murf We'll miss you
Ron Hope so--especially if you are trying to hit me. LOL
murf I would never hit a man while he's down
Ron I should save some of this corn.
loshimo Just got a mail order box last night which included a long handle shampoo brush. I've been having more and more trouble raising my arms above my head lately. Hopefully this will help keep my head clean. Any one experienced this?
TerryW I just put in a shower bench and another grab bar
TerryW Losh, I can only hold them up there for a minute or so
Gary_KC loshimo , I have the same problem, too.
Ron I always shower and wish I had more of a reach sometimes.
murf I just had to install solid grab bars in my shower. the stick on ones were not cutting it any more
loshimo I also got a grab bar with this order. This unit has a little set of windows that will change from green to red if the unit loses suction and need to be reinstalled.
TerryW Soon the pressure from the showerhead is gonn knock me off balance LOL
murf I'm looking at Premier Bathrooms showers
TerryW that is neat Losh
murf You can walk in site down and have a bath or shower
Ron Does the premier shower include a nurse?
TerryW the window
murf I wish
TerryW the nurse from one flew over the Coo koos nest
murf They are self contained units ... has anyone seen them?
murf what do you think?
TerryW they are nice
loshimo Are these the units that have a side door and you can use as a tub?
Ron Hey guys. I must go for now so--stay healthy till next we chat.
murf Are they expensive?
murf cya Ron stay on your feet
murf loshimo yes
TerryW how are you doing Gary?
TerryW you ok?
loshimo Do they require a lot of bathroom tearing to install?
Gary_KC TerryW. I am fine thank you.
murf I don't think so but doubt we could do it our selves
TerryW Thanks for your continued support of the KDA Gary
murf I will need to rip out a shower and a tub to install one if I get one
murf I not russing out to buy one
Gary_KC My right arm is weaker than left arm. i managed to take shower using the left arm.
TerryW Without the members support it would be hard on the KDA. every littl bit helps
murf with out members we wouldn't be!!
murf Thanks everyone
TerryW rhis week I goi back for my CAT scan to see if the liquid meds disolved my kidney stones
TerryW its been months on the meds
TerryW times a day
TerryW I hope so
murf good luck bud
murf I never want stones
TerryW no you don't
Dart! Terry, that doesn't sound like much fun!
TerryW they are like getting shot
murf what do they think caused them?
TerryW dunno, many things
TerryW not driking enough fluids
TerryW in my case low urine PH
TerryW Very acidic
loshimo OK gang... Gotta go... Stay healthy and vertical!!!
murf I try to drink lots of water so hopefully that helps
TerryW see ya losh
murf loshimo cya next time
TerryW my PH should be between . - . but it is like .
murf wow that is low
TerryW I don't know why
TerryW the meds I am taking raise the PH
TerryW its a liquid I drink
murf we know you were not in CA in the 's
TerryW yes i was
TerryW a kid
murf Too young for Acid?
TerryW I LOL
Dart! Have you had your drinking water tested, Terry?
TerryW I am gonna go, talk to you all next time
TerryW my water is great last time we had it tested
TerryW direct from our well
murf ok me too I got to go see TJ
TerryW ft straight down in granite
TerryW Goodbye all
TerryW END CHAT