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Kennedy's Disease Chat Transcript 12-03-2005
Topic: Open Forum
Host: Murray Williams
murf entered the room.
Bruce: Good Morning, it is a cold rainy day in Georgia.
murf: morning Bruce
Bruce: How are you doing these days? Has things settled down at work?
murf: A little cloudy here but looks like it might be a nice day
Bruce: We are supposed to be cold and rainy through Monday.
murf: I have a few weeks for this last deadline and think I might get it done.
Bruce: Of course, I could still be living in Minnesota. Their high today is 14 and the low 8. Tomorrow it is supposed to be a high of 8 and a low of 4. BURR!!!!
murf: Then I would be taking on the world anymore. to much for us old farts
murf: That's way too cold for me
Bruce: That is why we moved from Minnesota and I said I wouldn't move back.
murf: opps - I wouldn't be taking on the world
Bruce: John had dinner with Paul Taylor Thursday evening.
murf: I don't know how some of our people can handle it
murf: I just talked with John, he said it was great
Bruce: The stock market looks like it will finish on an up-tic. I hope so. It started out looking good and then fell flat. These last few weeks have been positive. I need a good finish to stay ahead of plan.
murf: Tell me....I have a lot invested at the moment and looks like I'll do very well this year now
LouLou entered the room.
murf: We need to talk offline about fundraising
Bruce: Morning Ron
murf: Morning Ron
murf: We're thinking too small I think
Bruce: I agree. It is too important of a subject. I believe we should have a conference call on the subject. We just don't have enough time during the BOD meeting.
LouLou: Good morning all. Hey Murf--we would just be getting back from the cruise.
murf: I agree we need to be adding a few 0's to the annual donations
LouLou: I still would be trying to get over my hangover, LOL
murf: I didn't think you went
MICH entered the room.
murf: Morning Mitch
LouLou: NO!!! If we went. Sorry to confuse you Murf.
MICH: Good Morning Bruce, Murf, and Lou Lou
murf: I mean Eric
Bruce: Good Morning Utah
Bruce: How are things at work these days Eric?
LouLou: Hi Mich. How is your weather? We are getting ready for snow here in Penna.
murf: My secretary and her husband was the only ones to go on the KDA cruise
Bruce: Did they have a good time?
murf: Their just docking this morning in Galveston. I haven't got a phone call yet so I guess they did.
MICH: We've been in the snow season for about a week... gave me just enough time to have cement poured for a small retaining wall to put up a vinyl fence... took two months with a shortage of powder for the cement.
Bruce: Ron, is the yard all cleaned up after falling the tree?
murf: I guess you wouldn't have made it home that quick would you ? Super Ron!
PA-Paul entered the room.
MikeG entered the room.
murf: Morning Paul
Bruce: Morning Paul. Long time ...
doughboy entered the room.
LouLou: Bruce--you will be missing alot of snow storms this year. If it gets too warm in Georgia--come back to PA. Yes Bruce. It was pretty easy.
Bruce: Morning TJ
murf: Morning TJ
MikeG: Hi everyone
murf: Morning Mike
Bruce: Morning Mike
PA-Paul: Boy you can say that Again
doughboy: good morning everyone
Bruce: How are things going for you Paul?
LouLou: Hi TJ and Mike.
MikeG: we have a wonderful looking day going for us in Florida
doughboy: Hey Lou what's up!
Michael17860 entered the room.
Bruce: Not up here, Mike. It is raining and cold in northern Georgia.
LouLou: Good to see you all on chat again.
PA-Paul: either am away doing something or just plain FORGET because by 10:30 est i am usually involved with something'
MikeG: that's why we moved down here
murf: Morning Michael
Bruce: Morning, Michael. How are you?
Michael17860: Hi all
doughboy: Well, I'm finished with my Christmas shopping, hope ya'll are too! My wife and I also celebrated our 30th anniversary Monday.
Bruce: Congratulations !
murf: Shopping...what's that?
Michael17860: Came back from vacation on the Mississippi and got a bad cold.
murf: New Orleans?
doughboy: Hey Murf, I'm working my katootie off this morning, I've got some people putting my christmas lights up on my house. Thank you, Bruce.
PA-Paul: Tomorrow is our 40th anniversary and our 3rd sons 20 birthday
LouLou: Do you guys go to stores that have scooters in store, for handicap use?
murf: TJ- send them over when their done.
PA-Paul: hey Lou yes i do when i can
doughboy: Well congratulations PA - Paul
murf: Congrats Paul~!!!!
doughboy: I take my scooter Lou
PA-Paul: Thanks I think ha
MikeG: I bring my own... their's is too slow for me
kelly entered the room.
MICH: I do got to stores with scooters including WalMart but if not a scooter store I take my Jazzy power wheelchair
Bruce: I just bought two shower bars. They are the type that have a suction cup and clips on each end to fasten them to the shower stall walls. I needed something for balance and for entering and exiting the shower. They work great. No tools required. They hold a substantial amount of my weight and are very secure. If I travel, they can be installed in any bath or shower and removed easily. The price was also right.
LouLou: Great Paul--40 years is quite an accomplishment.
murf: I hear you Mike
doughboy: You got that right Mike, boy is it agravating to use theirs.
Michael17860: Was suppose to leave from N.O. but instead went form Nashville to Memphis.
PA-Paul: I agree on too slow but the trouble of getting mine out of the van makes it almost not worth it
murf: Bruce please send me info I need some
doughboy: You have a lift don't you Paul?
PA-Paul: No0 I dont I have a 48 pound ramp that folds up
Terryw entered the room.
doughboy: Well Murf talked me into a lift and it's great
Terryw: Hello All
PA-Paul: yes bruce please email me that info also what is the weight suggested it supports
LouLou: Where is Coak this morning? Has anyone heard from him? Hi Terry.
Bruce: You got it. John Test said if you couldn't get them, he would drop ship them to anyone of us who need them. The price is approx. $12.50@ plus the cost of shipping.
murf: Michael - The cruise was also re-routed because of the hurricanes this year. Biggest season on record, glade its over!
Michael17860: Hi Terry
MikeG: that's true too... if I'm only going to a Walgreens or small store I usually walk. With my cane and AFOs that is.
doughboy: Murf you need 2 sets of rails, your kinda heavy! LOL
Terryw: Has anyone tried Wheatgrass Juice? I am gonna post this question in the forums also.
murf: John will not join us this morning
Terryw: I want to know if it makes any difference
doughboy: Just kidding bud
Bruce: Paul, I leaned down on the the bar and put at least 30-40#s of downward pressure on each one and they didn't give at all.
murf: Funny TJ
PA-Paul: I will also order 2 as 3 days ago i did slipo and lucky did not break anything (but the tile wall
murf: Morning Terry
Terryw: Hi Murf
Terryw: Its 31 here this morning. br
PA-Paul: hi Terry
doughboy: I know, bye the way, Bill is going to call a little later, we may be able to run over to your house this afternoon, Murf!
MikeG: 61 in sunny FLA
Bruce: I'll post the information on the forum today and also ask John how he wants to handle orders.
LouLou: Bruce--How do we contact John Test?
Terryw: But its a dry cold LOL
kelly: minas 10 in beautiful saskatchewan
Terryw: wow kelly
murf: Morning Kell - is that deg C?
kelly: no snow yet !!!!
PA-Paul: hey kelley OUCH
kelly: minas below cold
Bruce: Kelly, I talk about it all the time, but I always thought Minnesota was cold until I went to Prince Albert in January.
doughboy: Hello Kelly, my sister Louise is going to Canda for a few weeks tomorrow! I'll let her know how cold it is. How are you!
murf: right - I love Texas!!!!
MikeG: Terry, you've been arounf those horses too much...
kelly: Iam fine
PA-Paul: we might visit texas for jan/feb
murf: Look me up Paul if you have the time!!
PA-Paul: sounds good
doughboy: What the heck is it for
murf: Dinneers on me
da*rt entered the room.
MikeG: how about arginine... has anyone tried that?
Terryw: Wheatgrass juice is getting big herre in the US
PA-Paul: for what
Bruce: Morning Don
doughboy: What's it for Terry
Terryw: they squees the juice out of the grass
murf: Morning Don Hows the weather in BC?
Terryw: and drink it
PA-Paul: GREAT for horses
Terryw: Supposed to be good for you
kelly: is it one of those miracle drinks terry?? for all kinds of ailments??
MikeG: Yep, it always starts in CA. Then ripples east
da*rt: Good morning All - Sorry I'm late - login problems!
Bruce: Mike, what is arginine?
Terryw: I think it cleanses the body of toxins
Michael17860: I unerstand that wheatgrass will clean the inner organs.
Terryw: not sure
murf: That drink sounds illegal to me!
Terryw: Peopke only do it in 1oz shots
kelly: oh ok
PA-Paul: i'll have to look it up
doughboy: I don't know this, but I'm on a new drug called Byatte for Diabetes and it's making me lose 15 to 20 lbs. per month and whenever you reach the weight you are supposed to be at, it quits making you lose it.
PA-Paul: do you know whay it costs $
MikeG: yes, sorry Arginine
murf: Yup I thought so! LOL
Terryw: about $2,50 an oz
kelly: i bought a bottle of xango from hawia?? it kinda does the same as wheatgrass cost me 45 dollars canadian
PA-Paul: That does not sound too bad if it does something good
MikeG: It's a strong amino acid that I was told helps you regain strength...
PA-Paul: hey doughboy can you email me with that info also or post info to find it
MikeG: I've tried Mango juice too... never helped me
kelly: you did
Michael17860: Kelly did you see any difference after taking xango?
Bruce: Who recommended the stuff, Mike? Do you know if it helps?
kelly: no not really
MikeG: too expensive too... I was paying $35/bottle
kelly: yup its another scam i think lol ??
Terryw: I have been having lost of smoothies lately at Jamba Juice
PA-Paul: like the noni juice from some island
Terryw: Love em
Terryw: need to make my own
doughboy: Well Fella's, I have to leave now. Paul, you can look it up on the web under web MD but I'll be glad to email you the specifics. you can also look it up under type 2 diabetes and type in Byatte and it will give you the info.
murf: I guess we have to watch out for the crooks out there.
Bruce: Take care TJ
kelly: jus drink green tea lol its the same lol//2 //2
LouLou: So long TJ. Stay healthy.
PA-Paul: That is fine i will look into it.
murf: Talk to you later TJ
doughboy: Thanks, Bruce, my guy on the roof knocked the latter over and can't get off, so I'll have to try and put it back up there, see ya
Bruce: Green tea is very good for you and so is Banchi Twig tea (the twigs that green tea is made from but without the caffine). I really like that stuff and it is an antioxident (spelling).
doughboy: Bye all!
doughboy has left the room.
kelly: yah its good bruce plus its cheap to buy
Bruce: Don, what is going on in Liverpool these days? Is the weather good?
murf: Fire down the street I guess the holiday season has started here
Terryw: I had an isasue with my new PC the TV tuner. when I tried to run it it told me hardware not installed or makfubctioning. I had to pack it all up and take it back to Best Buy. The techs told me they did not know how to fix it and I had to re-install operating system
Terryw: I came home and called Sony, thay had it fixed in less than 30 min
PA-Paul: dont you just love that TErry
Terryw: The guy from sony said, You learned a lesson here" never go to best buy for tech help always call Sony first LOL
murf: I was only santa on two fire trucks!....COOL
MikeG: Bruce - it was a friend of mine in Atlanta who reccommended it. I bought a bottle yesterday and just took my first one today. I'll let you know if I see any good results from it.
PA-Paul: I know Bets buy has some great prices on some things but I really dislike that place here in PA
Terryw: It was a auto-update from Microsoft that messed it up
PA-Paul: thast really can tick you off.
Bruce: Thanks, Mike. I need a good legal pick-me-up.
Terryw: I was not about to re-install on just one guys recommendation. It took 2 weeks to get it up and running back where I had everything
MICH: Do any of you use a wheelchair or powerscooter in the house... I haven't yet but I can see the day coming sooner than later
kelly: it's good terry, you have alot of pc knowledge hey?
Terryw: Now I can get back to work and get those past chats posted & stuff
JoeK entered the room.
Terryw: Bruce the CutePDF writer I have says it wont work with XP is ther another version
murf: I have but not very often. I use a walker with wheels now in the house
MikeG: cheap too! I think I paid $3.50 for 50 caps.
Bruce: I do, Eric. Ever since the second fall this year and two broken bones, I use it for my general transportation. I still stand and move around the kitchen, office, etc., but I am not taking any chances right now. I am a little paranoid.
Bruce: Yes, Terry, I believe so.
PA-Paul: Hey MICh I have for a short time now and getting worse faster
Terryw: Bruce I am going to start taking Calcium to build my bones just in case I fall
kelly: as for me I'am still mobile,,, but my legs get sore often
LouLou: Has anyone heard when the tests by Dr Chen will be taking place? I was looking forward to that test at NIH.
Terryw: I have never broken a bone
kelly: and my lower back bigtime to
murf: Don't blame you Bruce I look at it the same way after braking my foot 4 times in one year
PA-Paul: you are lucky Terry
MikeG: Bruce, what bones did you break?
kelly: i emailed dr chen to??? he replyed to me but there only recruiting americans hopefully ill get selected for the study trial
Bruce: My wife carries a Glock around and said she will just shoot me if I go down again this year. (LOL)
kelly: when they go for canadains
murf: Ron- John will have word soon on that for us
Bruce: This last time, Mike, I broke both the tibia and fibula on the left leg. In January, I broke the left ankle, left fibula, and fractured the right tibia. It has been a hell of a year.
kelly: if and when they recruite canadains???
murf: LOL LOL
MikeG: Wow! I broke my fibula in September. Now I'm wearing the AFO everywhere.
Bruce: I now us a walker or chair all of the time. I hated for it to come to this, but ...
PA-Paul: Yes Bruce I do too
murf: We will need to get 50 people for the study
murf: Before they will start
kelly: well murf my twin brother and i applyed to nih for the study, we are perfect canaditates, in bethasda hopefully we;ll be selected for the placebo and muscle testing its a 2 yr study
murf: Canadians are welcome (aren't we lucky?!)
JoeK: Murf I gon on late -- What study?
LouLou: Are you guys getting ready for Xmas? If you are all ready, you are missing the thrill of last minute shopping. What a challenge.
kelly: actually dr chen told me they may recruite canadina if there is not enough americans
Bruce: Some time we need to have a chat on fire safety. I was reviewing our exit plans the other day and I could easily be cut off from the ramp. I need to update my plans just in case.
murf: Joe - its a clinical trial that NIH are planning
Terryw: I am gonna go guys, talk with ya all again soon.
kelly: ok bye terry
Terryw has left the room.
JoeK: Murf where can I get details?
murf: e-mail me later
MICH: Those that use walkers in the home... have you found any that do well in the grass outside, or on carpet, or winter ice??
LouLou: Good thought Bruce. Never know how to respond because, each case could be very different. Best laid plans--not always the best solution.
murf: no grass or snow just carpet and tile
murf: I would need chains for the wheels!
Bruce: Eric, carpet works well with mine, I don't believe any will work well on ice. My brother has one that has four wheels and brakes and he uses it most everywhere.
LouLou: LOL. Murf.
Bruce: It also has a seat for when he becomes tired.
murf: I got one like that too Bruce cost me $100 at SAM's Club
murf: Wheels are abour 6"
murf: but the brakes wouldn't work so well on ice I think
PA-Paul: do they roll when you are seated on itr??
murf: You can hold the brake easy enough when seated
PA-Paul: if the brakes are not locked LOL
Bruce: Well, I need to go. Thanks for the chat today Murray. I'll post the info on the forum for the grab bars as soon as John tells me how he wants to handle orders. Everyone, take care and stay healthy and safe. Mike, if the stuff works for you, let me know. Take care.
MikeG: You guys all need to move down here where we don't know what ICE is!
Michael17860: By all see you next chat.
Bruce has left the room.
Michael17860 has left the room.
PA-Paul: no I mean can i uise ti to move about if I want while seated
kelly: well my fellow kd friends i have to go to see ya next time take care
kelly has left the room.
murf: Paul I did the last time I broke my foot but it's not the best
LouLou: Paul--they are not made to move about while seated.
PA-Paul: thanks Murf 'and Lou
murf: Take care Kelly, Bruce & Michael
MICH: Speaking of seats does anyone have one of those seat cushions that catapults you out of a lazyboy chair and do they have them a Sam's Club?
MikeG: Gotta go too - take care everyone. Until next time... bye.
MikeG has left the room.
PA-Paul: MICH i do but very seldom use it got mine at wallgreens for 100./
PA-Paul: if we were close enough I would loan you mine....
murf: Mich - yes and the spread sheet online has them too. Their great
MICH: What do you call the seat ejector for 100??
PA-Paul: up easy
murf: Gee - mine was $650. did they see me coming or call me?
PA-Paul: what spread sheet Murf?
PA-Paul: murf do you mean a whole auto up recliner?
JoeK: I got a catapult cusion and use it often --- I installed backwards and leaned forward and it sent me to the floor
PA-Paul: my recliner that can raise me up cost about $600
murf: I put it together for the NOLA conference and it has all kinds of aids , websites, toolfree numbers for companies that supply everything we need to help us live.
LouLou: Murf--did your up easy lift cost $650? Was it just a chair lift that you can take with you to use anywhere.
murf: I bought the hole chair
da*rt has left the room.
murf: I guess that is where the cost difference is
PA-Paul: ok thats why it cost so much.. as for the spread sheet is it on line at the webv site?
murf: It is supposed to be but I'll send it to you and check online again for it
PA-Paul: Thanks so much
LouLou: Murf--Yours was cheap--mine cost $800 at the scooter warehouse in PA. I guesss they saw me coming.
PA-Paul: well BYE ALL till next time stay warm
PA-Paul has left the room.
LouLou: See you Paul. Stay healthy.
murf: See ya Paul I just sent it to you
JoeK: The cushion lift is a spring that compresses and releases when you shift your weight ($100 =/-)
murf: I kind of got a little side tracked when santa went by so I'll have to read this chat again
murf: That sounds abouut right Joe. Mine is the whole chair
MICH: It seems like its been months or even a year since I last borrowed my daughters computer for these chats... good to be back... God Bless... talk to you later
murf: Take care Mich Later...
JoeK: Lift chairs can be bought at Wal-mat pharmacy area here in NC
MICH has left the room.
LouLou: Well guys--I must go for now. Hope you all hav a merry Xmas. Stay healthy....
LouLou has left the room.
murf: Joe - Lots of places have them so I would be good to shop around and get the best price
da*rt entered the room.
murf: Ron - Take care
JoeK: need to go now
JoeK has left the room.
murf: Good chat today...very fast for me
murf: Well Don - I hope you have a great holiday season and we'll talk to you next time.
da*rt: I regret having lost contact - I will have to think of something intelligent to say so that I stay on line
murf: No probs
murf: This is the official end of the chat
murf: we can still talk if you want
da*rt: Lots of good stuff today, I thought - I look forward to reading it when it is posted.
da*rt: I'm gone, Murf and all - Thanks!
murf: I'll be getting it to Terry before noon but he has had computer problems lately so hopefully by Monday it will be up
murf: Take Car Don
murf: CareEND CHAT