Kennedy's Disease Association

A Public Benefit, Non-Profit Organization

"As a mother with a son who has KD, I appreciate those of you who are so dedicated to informing the public of this rare and difficult disease."

Doctors Familiar with Kennedy's Disease

 

The following doctors' names were given to us by individuals who have Kennedy's Disease (KD) that utilize their services. We have been told that these doctors have a familiarity with KD.

While the Kennedy's Disease Association cannot recommend any one physician, we make these names available by geographic location and give you the opportunity to decide if you would like to make contact with them. This list is not all encompassing. There are many doctors who are not on this list that treat KD and have knowledge of KD.

Important:  If you have a doctor that you wish to recommend, please send the information to This email address is being protected from spambots. You need JavaScript enabled to view it..

UNITED STATES

ARIZONA | CALIFORNIA | DELAWARE | FLORIDA | GEORGIA | ILLINOIS | INDIANA | IOWA | MARYLAND | MASSACHUSETTS |
MICHIGAN
 | MISSOURI | MINNESOTA | NORTH CAROLINA | OHIO | PENNSYLVANIA | TENNESSEE
| TEXAS | UTAH | WASHINGTONWISCONSIN |

OTHER COUNTRIES

UNITED KINGDOM | PHILIPPINES | SOUTH KOREA | SWEDEN | AUSTRALIA

 


ARIZONA

Dr Steven R. Hempelman
13640 N. Plaza Del Rio Blvd
Peoria, AZ 85381

(623) 876-3830

Dr. Shafeeg Lahda
500 W Thomas Rd
Phoenix, AZ 85013 
(602) 406-6262

K. Sivakumar, M.D.
222 W Thomas Rd
Phoenix, AZ 85013
(480) 314-1007

David S. Saperstein, M.D.
5090 N 40th St, Ste 250
Phoenix, AZ 85018
(602) 258-3354

Dr. Jiong Shi, M.D.
350 W Thomas Rd
Phoenix, AZ 85013
(602) 406-3000

Timothy M Miller, M.D.
1501 N. Campbell Ave
Tucson, AZ 85724
(520) 626-4147

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CALIFORNIA

Jonathan S. Katz, M.D.
2324 Sacramento St, Ste 111
San Francisco, CA 94115
(415) 600-3604-

Albert La Spada, M.D., PhD, FACMG
2880 Torrey Pines Scenic Dr, Ste 0642
La Jolla, CA 92093
(858) 246-0148

Tahseen Mozaffar, MD
200 S. Manchester Ave, Ste 110
Orange, CA 92868
(714) 456-2332
 

John W. Day, MD, PhD
Neelam Goyal, MD
Jacinda Sampson, Neurogenticist
Yuen So, MD, PhD
Stanford Neuroscience Health Center
Department of Neurology & Neurological Sciences
213 Quarry Road
Palo Alto, CA 94304
650-497-5934

 

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 DELAWARE

Enrica Arnaudo, M.D.
774 Christiana Road, Ste 106
Newark, DE 19713
(302) 731-4663

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FLORIDA

Daniel P. Stein, M.D.
5602 Marquesas Cir, Ste 108
Sarasota, FL  34239
(941) 315-6470

Mayo Clinic - Nuerology Dept
4500 San Pablo Road
Jacksonville, FL  32224
(904) 953-0853

Laura W. Katzin, M.D.
2A Columbia Dr
Tampa, FL  33606
(813) 259-0821

Dr. Jose Pizarro-Otero, M.D.
10141 Big Bend Rd Ste 206
Riverview, FL 33578
(813) 397-1274

 

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GEORGIA

Linton Hopkins, M.D.
1365 Clifton Rd NE
Atlanta, GA 30322
(404) 778-3444

John Sladky, M.D.
2015 Uppergate Dr
Atlanta, GA 30322
(404) 727-5756

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ILLINOIS

Robert Sufit, M.D. 
675 N. St. Clair, Ste 20
Chicago, IL  60611
(312) 695-7950

Teepu Siddique, M.D. 
675 N. St.Clair, Ste 20
Chicago, IL  60611
(312) 695-5886

Richard H. Lee, M.D.
5401 N Knoxville Ave, Ste 218
Peoria, IL  61614
(309) 692-1016

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INDIANA

David A. Josephson, M.D.
8402 Harcourt Rd, Ste 615
Indianapolis, IN 46260
(317) 806-6991

Kristi K. George, M.D.
1400 N Ritter Ave, Ste 615
Indianapolis, IN 46219
(317) 715-5600

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IOWA

Jonathan Moravek, M.D.
201 Ridge St
Council Bluffs, IA 51503
(712) 396-4050

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MARYLAND

Neil C. Porter, M.D.
16 S Eutaw St
Baltimore, MD 21201
(410) 328-5660

David R. Cornblath, M.D.
610 N Caroline St
Baltimore, MD 21287
(410) 955-2229

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MASSACHUSETTS

Kenneth Gorson M.D./SEM/CCHCS
736 Cambridge St
Boston MA 02135
(617) 789-2375

Anthony Amato, M.D. 
75 Francis Street, Boston, MA 02115
(617) 732-8046

Dider Cross, M.D.     
1 Hawthorne Place, Ste 105
Boston, MA  02114
(617) 720-0030

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MICHIGAN

Daniel S. Newman, M.D.
2799 West Grand Blvd.
Detroit, MI 48202
(313) 916-2594

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    MISSOURI

    Raghav Govindarajan, M.D.
    660 S Euclid Ave, Ste 8111
    St Louis,, MO 65201
    (341) 362-7241

    Alan Pestronk, M.D.
    517 Euclid Ave
    St. Louis, MO 63110
    (314) 362-6981

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    MINNESOTA

    David Walk, M.D.
    420 Delaware St SE
    Minneapolis, MN 55455
    (612) 625-1969

    William David, M.D.
    825 So. 8th St, Ste 250
    Minneapolis, MN 55404
    (612) 347-6450

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    NORTH CAROLINA 

    Nizar Chahin, M.D.
    101 Manning Drive
    Chapel Hill, NC 27514
    919-966-4401

    Elena Brawer, M.D.
    1010 Edgehill Rd N
    Charlotte, NC 28207
    (704) 446-1900

    Donald Saunders, M.D. 
    1255 Hospital South   
    Durham, NC 27710
    (919) 684-6078

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    OHIO

    Douglas B. Karel, M.D.
    101 Timberfield Dr N
    Lima, Ohio 45801
    (419) 225-5100

    John Quinlan, M.D.
    222 Piedmont Ave, Ste 3200
    Cincinnati, OH 45219
    (513) 475-8730

    Hani Kushlaf, M.D.
    222 Piedmont Ave, Ste 3200
    Cincinnati, Ohio 45219
    (513) 475-8730

    Laura Sams, M.D.
    222 Piedmont Ave, Ste 3200
    Cincinnati, Ohio 45219
    (513) 475-8730

    Jerry R. Mendell, M.D.
    700 Childrens Dr
    Columbus, OH 43210
    (614) 722-2715

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    PENNSYLVANIA

    Goran Rakocevic, M.D.
    900 Walnut St, Ste 200
    Philadelphia, PA  19107
    (215) 955-4087 

    Terry Heiman-Patterson, M.D.
    219 N. Broad St
    Philadelphia, PA  19107
    (215) 762-6915

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    TENNESSEE

    J. Paul Taylor, M.D.
    262 Danny Thomas Pl
    Memphis, TN 38105
    (901)-595-6047

    Joshua P. Alpers, M.D.
    979 E 3rd St, Ste C-830
    Chattanooga, TN 37403
    (423) 778-9001

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    TEXAS

    Dennis Mosier, M.D.
    1 Baylor Plaza
    Houston, TX 77030
    (713) 798-6151

    Milvia Y. Pleitez, M.D.
    6560 Fannin St, Ste 2100
    Houston, TX 77030
    (713) 441-3780

    Erica Simpson, M.D.
    6560 Fannin St
    Houston, TX 77030
    (713) 441-3336

    Daragh Heitzman, M.D.
    6302 Gaston Ave
    Dallas, TX  75214
    (214) 827-3610 

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    UTAH

    Dr. David Renner, M.D.
    175 S Medical
    Salt Lake City, Utah 84108
    (801) 585-5405

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    WASHINGTON

    Peter J. Struck, M.D.
    1400 E. Kincaid Street
    Mount Vernon, WA 98274
    (360) 428-2500
    -

    University of Washington
    Medical Genetics Clinics
    1705 NE Pacific St
    Seattle, WA 98195
    (206) 598-4030 

    Robin L. Bennett, MS, CGC
    1959 NE Pacific St
    Seattle, WA 98195
    (206) 598-4030

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    WISCONSIN

    Wendy Larson Peltier, M.D.
    9200 W Wisconsin Ave,
    Milwaukee, WI 53226
    (414) 805-3666

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    United Kingdom

    Adrian J. Wills, M.D.
    Queen's Medical Centre, University Hospital NHS Trust,
    Nottingham, NG7 2UH
    0115 924 9924

    Angela F Brady, M.D.
    North West London Hospitals NHS Trust,Watford Road,
    Harrow, HA1 3UJ
    020 8869 2795

    Dr. Pietro Fratta, M.D.
    Queen Square London WC1N 3BG
    020 3448 3111

    Kevin Talbot, M.D.
    Headington Oxford OX3 9DU
    01865 234829

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    Philippines

    Raymond L. Rosales, M.D.
    University of Santo Tomas Hospital
    Sampaloc , Manila, Metro Manila
    (632) 7313001

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    South Korea

    Department of Neurology
    Seoul National University Hospital
    28 Yongon-Dong, Chongno-Gu, Seoul 110-744, Korea
    82-2-2072-2237

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    Sweden

    Lars-Olov Ronnevi, M.D.
    Head of Neurology,  Karolinska University Hospital
    Stockholm, Sweden
    468-51775571

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    Australia

    Garth Nicholson, M.D.
    Concord Hospital, University of Sidney
    Sidney, Australia
    61 2 9767 6796

     


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