Kennedy's Disease Association

A Public Benefit, Non-Profit Organization

"Back in the late 1990s, I felt alone. I had just been diagnosed with Kennedy's Disease. I came across the KDA and attended a Saturday chat. What an eye opener! There were two dozen others on the chat that were going through what I was experiencing."

Doctors Familiar with Kennedy's Disease

 

The following doctors' names were given to us by individuals who have Kennedy's Disease (KD) that utilize their services. We have been told that these doctors have a familiarity with KD.

While the Kennedy's Disease Association cannot recommend any one physician, we make these names available by geographic location and give you the opportunity to decide if you would like to make contact with them. This list is not all encompassing. There are many doctors who are not on this list that treat KD and have knowledge of KD.

Important:  If you have a doctor that you wish to recommend, please send the information to This email address is being protected from spambots. You need JavaScript enabled to view it..

UNITED STATES

ARIZONA | CALIFORNIA | DELAWARE | FLORIDA | GEORGIA | ILLINOIS | INDIANA | IOWA | MARYLAND | MASSACHUSETTS |
MISSOURI
| MINNESOTA | NORTH CAROLINA | OHIO | PENNSYLVANIA | TENNESSEE
| TEXAS | UTAH | WASHINGTON |

WISCONSIN |

OTHER COUNTRIES

UNITED KINGDOM | PHILIPPINES | SOUTH KOREA | SWEDEN | AUSTRALIA

 


ARIZONA

Dr Steven R. Hempelman
13640 N. Plaza Del Rio Blvd
Peoria, AZ 85381

(623) 876-3830

Dr. Shafeeg Lahda
500 W Thomas Rd
Phoenix, AZ 85013 
(602) 406-6262

K. Sivakumar, M.D.
222 W Thomas Rd
Phoenix, AZ 85013
(480) 314-1007

David S. Saperstein, M.D.
5090 N 40th St, Ste 250
Phoenix, AZ 85018
(602) 258-3354

Dr. Jiong Shi, M.D.
350 W Thomas Rd
Phoenix, AZ 85013
(602) 406-3000

Timothy M Miller, M.D.
1501 N. Campbell Ave
Tucson, AZ 85724
(520) 626-4147

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CALIFORNIA

Jonathan S. Katz, M.D.
2324 Sacramento St, Ste 111
San Francisco, CA 94115
(415) 600-3604-

Albert La Spada, M.D., PhD, FACMG
2880 Torrey Pines Scenic Dr, Ste 0642
La Jolla, CA 92093
(858) 246-0148

Tahseen Mozaffar, MD
200 S. Manchester Ave, Ste 110
Orange, CA 92868
(714) 456-2332
 

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 DELAWARE

Enrica Arnaudo, M.D.
774 Christiana Road, Ste 106
Newark, DE 19713
(302) 731-4663

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FLORIDA

Daniel P. Stein, M.D.
5602 Marquesas Cir, Ste 108
Sarasota, FL  34239
(941) 315-6470

Mayo Clinic - Nuerology Dept
4500 San Pablo Road
Jacksonville, FL  32224
(904) 953-0853

Laura W. Katzin, M.D.
2A Columbia Dr
Tampa, FL  33606
(813) 259-0821

Dr. Jose Pizarro-Otero, M.D.
10141 Big Bend Rd Ste 206
Riverview, FL 33578
(813) 397-1274

 

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GEORGIA

Linton Hopkins, M.D.
1365 Clifton Rd NE
Atlanta, GA 30322
(404) 778-3444

John Sladky, M.D.
2015 Uppergate Dr
Atlanta, GA 30322
(404) 727-5756

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ILLINOIS

Robert Sufit, M.D. 
675 N. St. Clair, Ste 20
Chicago, IL  60611
(312) 695-7950

Teepu Siddique, M.D. 
675 N. St.Clair, Ste 20
Chicago, IL  60611
(312) 695-5886

Richard H. Lee, M.D.
5401 N Knoxville Ave, Ste 218
Peoria, IL  61614
(309) 692-1016

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INDIANA

David A. Josephson, M.D.
8402 Harcourt Rd, Ste 615
Indianapolis, IN 46260
(317) 806-6991

Kristi K. George, M.D.
1400 N Ritter Ave, Ste 615
Indianapolis, IN 46219
(317) 715-5600

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IOWA

Jonathan Moravek, M.D.
201 Ridge St
Council Bluffs, IA 51503
(712) 396-4050

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MARYLAND

Neil C. Porter, M.D.
16 S Eutaw St
Baltimore, MD 21201
(410) 328-5660

David R. Cornblath, M.D.
610 N Caroline St
Baltimore, MD 21287
(410) 955-2229

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MASSACHUSETTS

Kenneth Gorson M.D./SEM/CCHCS
736 Cambridge St
Boston MA 02135
(617) 789-2375

Anthony Amato, M.D. 
75 Francis Street, Boston, MA 02115
(617) 732-8046

Dider Cross, M.D.     
1 Hawthorne Place, Ste 105
Boston, MA  02114
(617) 720-0030

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MISSOURI

Raghav Govindarajan, M.D.
660 S Euclid Ave, Ste 8111
St Louis,, MO 65201
(341) 362-7241

Alan Pestronk, M.D.
517 Euclid Ave
St. Louis, MO 63110
(314) 362-6981

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MINNESOTA

David Walk, M.D.
420 Delaware St SE
Minneapolis, MN 55455
(612) 625-1969

William David, M.D.
825 So. 8th St, Ste 250
Minneapolis, MN 55404
(612) 347-6450

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NORTH CAROLINA 

Nizar Chahin, M.D.
101 Manning Drive
Chapel Hill, NC 27514
919-966-4401

Elena Brawer, M.D.
1010 Edgehill Rd N
Charlotte, NC 28207
(704) 446-1900

Donald Saunders, M.D. 
1255 Hospital South   
Durham, NC 27710
(919) 684-6078

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OHIO

Douglas B. Karel, M.D.
101 Timberfield Dr N
Lima, Ohio 45801
(419) 225-5100

John Quinlan, M.D.
222 Piedmont Ave, Ste 3200
Cincinnati, OH 45219
(513) 475-8730

Hani Kushlaf, M.D.
222 Piedmont Ave, Ste 3200
Cincinnati, Ohio 45219
(513) 475-8730

Laura Sams, M.D.
222 Piedmont Ave, Ste 3200
Cincinnati, Ohio 45219
(513) 475-8730

Jerry R. Mendell, M.D.
700 Childrens Dr
Columbus, OH 43210
(614) 722-2715

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PENNSYLVANIA

Goran Rakocevic, M.D.
900 Walnut St, Ste 200
Philadelphia, PA  19107
(215) 955-4087 

Terry Heiman-Patterson, M.D.
219 N. Broad St
Philadelphia, PA  19107
(215) 762-6915

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TENNESSEE

J. Paul Taylor, M.D.
262 Danny Thomas Pl
Memphis, TN 38105
(901)-595-6047

Joshua P. Alpers, M.D.
979 E 3rd St, Ste C-830
Chattanooga, TN 37403
(423) 778-9001

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TEXAS

Dennis Mosier, M.D.
1 Baylor Plaza
Houston, TX 77030
(713) 798-6151

Milvia Y. Pleitez, M.D.
6560 Fannin St, Ste 2100
Houston, TX 77030
(713) 441-3780

Erica Simpson, M.D.
6560 Fannin St
Houston, TX 77030
(713) 441-3336

Daragh Heitzman, M.D.
6302 Gaston Ave
Dallas, TX  75214
(214) 827-3610 

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UTAH

Dr. David Renner, M.D.
175 S Medical
Salt Lake City, Utah 84108
(801) 585-5405

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WASHINGTON

Peter J. Struck, M.D.
1400 E. Kincaid Street
Mount Vernon, WA 98274
(360) 428-2500
-

University of Washington
Medical Genetics Clinics
1705 NE Pacific St
Seattle, WA 98195
(206) 598-4030 

Robin L. Bennett, MS, CGC
1959 NE Pacific St
Seattle, WA 98195
(206) 598-4030

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WISCONSIN

Wendy Larson Peltier, M.D.
9200 W Wisconsin Ave,
Milwaukee, WI 53226
(414) 805-3666

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United Kingdom

Adrian J. Wills, M.D.
Queen's Medical Centre, University Hospital NHS Trust,
Nottingham, NG7 2UH
0115 924 9924

Angela F Brady, M.D.
North West London Hospitals NHS Trust,Watford Road,
Harrow, HA1 3UJ
020 8869 2795

Dr. Pietro Fratta, M.D.
Queen Square London WC1N 3BG
020 3448 3111

Kevin Talbot, M.D.
Headington Oxford OX3 9DU
01865 234829

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Philippines

Raymond L. Rosales, M.D.
University of Santo Tomas Hospital
Sampaloc , Manila, Metro Manila
(632) 7313001

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South Korea

Department of Neurology
Seoul National University Hospital
28 Yongon-Dong, Chongno-Gu, Seoul 110-744, Korea
82-2-2072-2237

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Sweden

Lars-Olov Ronnevi, M.D.
Head of Neurology,  Karolinska University Hospital
Stockholm, Sweden
468-51775571

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Australia

Garth Nicholson, M.D.
Concord Hospital, University of Sidney
Sidney, Australia
61 2 9767 6796

 


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